The following information is to be used as a guide and at the discretion of the end-user and should not replace a doctor’s opinion.
OVERVIEW
Juvenile idiopathic arthritis (JIA) is a chronic autoimmune condition in children under 16 that causes joint inflammation, pain, and stiffness:
- Juvenile: starts in childhood
- Idiopathic: cause unknown
- Arthritis: joint inflammation
JIA affects about 1 in 1 000 children. Symptoms can include swelling and warmth in the joints, fatigue, fever, and a rash. It can also affect the eyes and internal organs.
JIA is most often diagnosed between the ages of 2 and 4 years and affects more girls than boys. JIA is often very different from adult arthritis, and it needs a paediatric rheumatologist to treat it properly.
The outlook for JIA is good for many children with early and aggressive treatment, with 50–70% achieving remission. While some children fully recover, others may have symptoms that persist, leading to potential long-term challenges like chronic pain, reduced mobility, slow growth, thinning bones, and in rare cases, problems with the kidneys, heart, or other organs.
JIA is the most common cause of musculoskeletal disability in children. Children who are diagnosed quickly and given the most appropriate treatments have the greatest chance of achieving long-term remission from symptoms.
JUVENILE ARTHRITIS IN SOUTH AFRICA
Between 19 000 and 75 000 South African children are estimated to suffer from JIA. The majority are undiagnosed or receiving inadequate treatment. Untreated JIA leads to unnecessary growth- and joint deformities and can affect a child’s ability to use their joints.
Unfortunately, there are very few paediatric rheumatologists in South Africa, so it is essential that parents learn to recognise the symptoms of JIA and actively seek the correct treatment. Arthritis Kids South Africa is a non-profit company that was started by a parent to help other parents with children suffering with JIA so that no child in South Africa need suffer unnecessary pain and disability for undiagnosed or untreated arthritis.
Most South African children have limited access to primary healthcare and none to specialist doctors. While a lucky few do receive treatment, the majority suffer from a general lack of awareness and an under-resourced healthcare system. They risk disability, blindness and ongoing pain.
SYMPTOMS OF JUVENILE ARTHRITIS
There are seven subtypes of JIA, each with slightly different symptoms. The most common symptoms across all subtypes include joint swelling, stiffness, and pain. Other common symptoms include skin rashes, fatigue, and fevers.
Here are some common symptoms to have investigated if they last for longer than a week:
- Is your child slow to get moving in the mornings or after sitting for a long time? Arthritic joints can be difficult to move but ‘warm up’ after a while.
- Is your child limping, or have they changed the way they use their bodies? Do they avoid any activities, or have they stopped doing things?
- Does your child complain of pain or have joints that are warm to the touch?
- Rashes and fevers can come and go with no apparent cause.
- Is your child tired despite getting enough sleep? Are they getting enough sleep, or do they wake up a lot and seem uncomfortable or in pain?
- Does your child complain of painful eyes and lights being too bright?
TIP: Joints that are stiff in the mornings can appear entirely normal later in the day. This is because movement helps loosen joints, but it can make doctor visits frustrating – without witnessing the symptoms themselves, doctors can find it hard to diagnose the disease. It is a good idea to take videos and photos of your child’s symptoms when you notice them so that you can show these to your doctor during the consultation.
Autoimmune diseases are characterised by symptoms that come and go in waves, so your may have a child who is running around one afternoon and be too sore to move the next day. This is another reason why documenting your child’s symptoms is important.
IMPORTANT NOTE: Arthritic pain in children is sometimes dismissed as growing pains. Growing pains do sometimes occur in young children from around five and then again in the last stage of teenage growth. However, growing pains only ever happen at night and are limited to large joints, like the knee. Growing pains will never result in swelling, inflammation, or an inability to use a limb.
WHAT CAUSES JUVENILE ARTHRITIS?
The cause of JIA is unknown. Most research indicates that it is an autoimmune disease.
An autoimmune disease is when is when the body’s own immune system starts to attack and destroy cells and tissues (particularly in the joints) for no apparent reason. Both genetics and environmental factors seem to play a role.
TREATING JUVENILE ARTHRITIS
JIA cannot be cured. Treatment is focused on getting the symptoms under control. This requires stopping the immune reaction causing the symptoms.
THE COMPLICATIONS OF JUVENILE ARTHRITIS
Nearly half of all children with JIA recover fully. For those who do not, they may suffer symptoms for years. These can range from rashes or fever to arthritis that gets worse. Problems may include slow growth and thinning bones (osteoporosis). In rare cases, there may be problems with the kidneys, heart, or endocrine system.
By carefully managing your child’s condition and seeking appropriate medical attention, you can greatly reduce the risk of your child developing the following complications:
MoreDO CHILDREN EVER OUTGROW JUVENILE ARTHRITIS?
Children can grow out of JIA, but it is not guaranteed. Approximately 50% may experience remission within five years of starting treatment, and some may eventually enter full remission with little or no joint damage. Unfortunately for some, the symptoms persist into adulthood and develop into adult arthritis.
MoreLIVING WITH JUVENILE ARTHRITIS
Lifestyle strategies to manage your child’s arthritis include:
FURTHER READING
Visit these sites to learn more: